I woke up Thursday with a strange feeling.
I knew the Doctor appointment I had scheduled for 3:15 would be missed,
while every part of my body started to feel heavy more and more through the aftternoon.
In the blink of an eye, the episode began;
this wasn't one I could super woman my way through,
within 10 minutes, we were on our way to the ER.
within 10 minutes, we were on our way to the ER.
Because I've been there hundreds of times,
the second they saw me, I was in a wheelchair, taken back to the room area..
unfortunately, I was there at the busiest time of day,
the room they wanted to put me in was taken by an emergency ambulance. |:
they would have left me in a wheelchair, outside of the rooms,
if one of the amazing nurses hadn't voiced up and said "NO, she NEEDS a room"
and put me in a special room, IV port placed in my arm immediately.
I don't remember much,
except fighting the pain with every part of my body.
And how I could not get comfortable in the ER,
so I was told I was being admitted.
For 5 days I was there (though I'd swear it was 3..)
and they were the most terrible of this year.
The vomiting continued for the first three days, until finally
they found the right mix of medications.
It was hard, repeating myself and not being heard or helped-
ALL I wanted was to feel normal..for the nausea to go away,
for the pain to stop.
Eventually it did,
and I took advantage cuddling up and sleeping as much as I could
Four pillows later, I started to feel good again. :p
During this stay I had different roommates,
the first- by far the craziest of all.
She didn't like sharing a room, or anything, in fact.
She bit the nurses, hit the nurses, threw her peas across the room..
though I can't say I blame her for that, hospital food is so terrible;
^ whatever THAT is, is what they gave me to eat. HA. right.
and decided that underwear was not needed, exposing her old lady parts to everyone.
Basically she made the stay far more interesting. ^.~
I'm now on two more medications (making it 10 a day now)
and these are serious business;
basically, for epilepsy, seizures,
& that super important nerve that runs down the center of us.
& that super important nerve that runs down the center of us.
I'm not getting my hopes up like I usually do with new meds and ideas,
just taking it hour by hour, doing what I can to survive.
vagal response of the vagus nerve** hehe.
ReplyDeleteWhat all medications are you on out of the 10?
Lupron, Gabapentin (Neurotin) and amitriptyline, and what else?
And what have they ruled out you not having?
For epileptic seizures, I could see it possible, because postitical stage many patients may vomit, but that's usually in tonic clonic seizures.
I haven't really seen or read much about your signs and symptoms. Just weak and then vomiting and pain everywhere. What normally happens at onset, etc? AND what are your labs? Like have they checked your thyroid gland, anterior pituitary gland, or maybe even posterior pituitary gland. etc. And labs like liver function tests, blood tests, complete blood count, and electrolytes? If so were most normal or were some high some low etc? Or did they even bother to tell you?
And another thing is (because I haven't had time to read all of your blogs) have they stated anything about fibromyalgia or ruled that out?
I know it sounds like a lot of questions. haha.
I think eventually you can get it figured out for what you have for sure and the medicines to treat it.
Send me a facebook message or deviantART message as a reply. <333
You are beautiful and so so so strong. Don't let anyone tell you otherwise. I'm sitting here, behind the saftey of my laptop screen, just cringing because through your words, I can feel phantom pain. I wish that I could help you to feel normal. I wish that there was no more pain. I hate seeing people suffer; it isn't fair.
ReplyDeleteKeep fighting, hang on to what you find familiar, be it your camera, familiy, friends or even the nurses that care for you. Take each breath as it comes, and know that there are many people thinking, hoping, praying, pleading for your health to return. <3
- Tab.
Lauren!-
ReplyDeleteI'll note you on dA with the more detailed aspects of my illness that I tend to keep secret from the ENTIRE internet world. I mean, they don't need to know EVERYTHING in my life, you know??
Though I will say, I have indeed been diagnosed with Fibro, and I'm taking Cymbalta and Neurotin for that..the Neurotin works for other things as well. It's a miracle drug! I've noticed a few (though subtle) changes since I've been on it. (: YAY!
So yes, look for a note from me in your dA inbox within the next few days!<333
Tab-
ReplyDeleteyour words made me pout, and then tear up a bit, and smile..so very wide. :D
It gets lonely, and I sometimes wonder if anyone even notices I'm not around..so hearing such words make my heart filled with joy! <3
Thank you (: Support like yours keeps me going, for sure<3